Saturday, 30 October 2010

Zoe: Ambulance please

I couldn't find Sonny when I got up this morning. I'd heard him get up but when I came down he wasn't in his room or downstairs with the girls (Ruby had a friend to stay overnight). I discovered him collapsed on the floor having fallen off his chair in his bedroom, breathing strangely and I couldn't wake him. I refuse to share what went through my mind but needless to say it was an almighty relief when he started to come round and chat about what had happened in the ambulance on our way to the Whittington. He appears to have had some kind of seizure, fit type thing however, after lots of tests he's been given the all clear. We have know idea what caused it and probably never will. He's being kept in overnight for observation but the plan is to let him home tomorrow for his Halloween party. Personally, I've had enough frights this weekend.

By the way, the photo is of Sonny fooling around with the face mask I insisted he wore in A&E. Told you he was feeling ok.

Friday, 29 October 2010

Sonny:Nothing goes my way

I never get to do anything with my mates anymore because as soon as thy start sniffing we have to cancel our plans. Its just not fair. My birthday is coming up and I have decided who I want to come but after all these cancelations I am bracing myself for the phone call telling me that someone's sniffing or coughing or had to blow his nose and can't come to my party. Life just isn't fair!!!!

Thursday, 28 October 2010

Zoe: Ordinary Day

I'm nursing a wee hangover after another cheeky night out with my fella. The house is full of kids making a right old racket above my head and the chandeliers are mildly swaying. I don't mind.  Gav is hammering away in the garden making a shed (I know, what a man) and I'm wondering how long I can get away with doing nothing...

Tuesday, 26 October 2010

Gavin: Some wouldn't, but Tiger Wood


We headed to the driving range today to see if class really is permanent. Despite not having swung a club in anger for over a year and obviously not being in peak condition, Sonny consistently nailed his driver to 120 yards with ease. It was quite funny watching him get adoring glances from all the Highgate mums having lessons only for their looks to turn to horror when they realise that it takes more than a full set of Callaways and some Titleist balls to hit shots like that. And when I say 'Highgate mums' I mean 'me', obviously.

Monday, 25 October 2010

Gavin: Schoolboy errors

Arsenal beat Man City at the weekend 87-0 and the sheer excitement has meant I've taken a week off to celebrate. Today we went for a short walk to Tesco's, ate hot dogs, played table tennis on his PS3 (the last one blew up) and talked about how Nasri is the future and you don't need to spend £50m to win the league. His bloods are now recovering so he doesn't feel too tired and, despite the battering the steroids are doing to his body is in great spirits. He's currently doing fake entrance exams where he's scoring about 95% despite missing a year of school. We're working hard on the other 5% as we speak. 

Saturday, 23 October 2010

Gavin: Thankyou

We spent the afternoon today organising Match attax into 3 piles of firsts, seconds and thirds then recording the doubles and triples and posting them on a match attax swapsite. Considering he has so many, Sonny now has a full time job managing his account and patiently wrapping cards in cardboard to send off to other kids. You may not realise, but sending him a couple of packets has opened this up for him and for that we're incredibly grateful. Alongside this, we've received original paintings from Italy, cuddly toys from Canada and a rather nice Fortnum and Mason hamper for us. Everyone has been amazingly generous and we really do appreciate it. I don't want him to come across as grabby, but his Christmas list has a Range Rover Sport at the top followed by size 7 Louboutins.

Friday, 22 October 2010

Zoe: Ill at ease

Yesterday evening we finally got the news that Sonny's donor was willing and able to give more cells. This brilliant news was rather dampened by the fact that Sonny is starting to feel rather rubbish. Nothing major, just really tired. His blood results are showing that the chemo is doing its job and everything is really suppressed but it now means we are on red alert again in case of neutropenic infection.

He's got to go into the Whittington today for some more platelets. To give you an idea of what this stuff does he's got a platelet count of 11 whereas you and I will have one of 150-400. So no dancing around here, its business as usual. I'm going see if he can have some GCSF whilst he's there too as this should boost his neutrophils but they may not agree as he's had a bad reaction to them twice now. Can't believe that I'm so blase about the reaction that I'm prepared for him to have another reaction in 'safe' conditions to avoid him having another spell in hospital but that really is the way it is - and I hate it.

Wednesday, 20 October 2010

Gavin: Waiting


It's an uncomfortable time at the moment as we've had no word from the donor (as yet). Sonny is doing great and, despite all the negatives his well being has a huge effect on our bigger picture. In the past, we've watched him lose two stone and have the surgical team visit us each morning. We've been told 'this boy is on very thin ice' by a Locum on a Sunday at midnight and of course, we've taken him to intensive care at 4am and held each other tightly. But, despite the fact that his cancer is back and in more places than before, he's happy, chatty and enjoying himself. Doctor's know the symptoms, not the every day. If he's happy, so are we. It's his illness after all, we'll be lead by him.

Tuesday, 19 October 2010

Zoe: Ticking along

Sonny's continues to be chirpy and is showing no real side effects from his chemotherapy. He's become rather attached to his sprouting head of hair so it will be a real pity if it starts to drop out. He gelled it the other morning which properly made me laugh - lots. With no future treatment planned for a few weeks he's busying himself blogging and searching for Match Attax swaps on line. I'm quite enjoying pottering around like an old lady planting my spring bulbs. Black tulips again this year with snowdrops if you're interested.

Sunday, 17 October 2010

Gavin: Date night

Zo's mum came up tonight so me and zo went out to our local italian restaurant. I'm quite pissed and Zo's still tallking to her mum about zucchini while her eyes glaze over. Probably best I blog tomorrow as the keys on the computer keep rearranging themselves to confuse me. kcinfug hngit.