Gavin: Who's that good looking young man?

Jack Wilshere, possibly the most exciting talent in football today came to see Sonny this afternoon. It was all a bit overwhelming for Sonny, who had lots of questions ready but couldn't quite get them out. Jack was a very lovely lad who, even when relegated to Sonny's third favourite Arsenal player behind Robin and Nas, immediately tweeted the picture and added 200 followers to Sonny in about an hour. He's so going in my fantasy team at the weekend.
The rest of the day saw Sonny remaining stable and despite everything, has moments of being chatty and funny. None of us, including the consultants, have any real idea of what's going on but it's fair to say it's not good. We're being led by him and making sure he's as happy and comfortable as possible.
If any other Arsenal players are reading, feel free to drop in. It was a better medicine than his err, medicine.

Zoe: Deja vu

Sonny was transferred back to GOSH yesterday where a CT scan indicated a possible fungal infection in his lungs. This is not good news. His comfort is our number one priority but we reluctantly agreed to a small procedure this afternoon to remove some fluid from his lung to make his chest feel a little easier and to allow the fluid to be tested. Gavin and I are numb. Things seem to be tumbling like a deck of cards at the moment and we are being forced to confront some very difficult emotions while our gorgeous boy watches The Champions League.

Gavin: Monday

Sonny was admitted to the Witt today with breathing issues. He's stable but being heavily supported by oxygen. We'll do our best to keep you up to date.

Gavin: Easter Sunday

We've had a lovely start to the day with a quick egg hunt and then more chocolate than you could possibly eat in a year laid out on the table for the kids. Thanks to everyone who sent stuff over, you're very sweet.

The PET results have shown there is disease progression which means despite radiotherapy, Sonny will need some other form of treatment. However, due to the TTP blood problems, nothing can happen until this is resolved. We're keeping everything crossed that this will begin to improve soon so we can discuss the next options. We should know more Wednesday.

Gavin: Ages ago...

... I remember a comedian saying "you know that feeling when you lean back on your chair at school and you go too far but just at the last minute you grab the edge of your desk and save yourself... I feel like that all the time".

Natch.

Gavin: Busy, busy, busy

Sonny, Ruby and Zo went to Essex today to play Monopoly in the garden with Nanny, Da and Cousin Alex as his bloods had held enough that he didn't need another transfusion. We've left Ruby there as tomorrow is a big day at GOSH where we get PET results and the next plan. Strangely, we're not spending the whole evening discussing the outcome like we used too as we realise that time will be the biggest deciding factor in the outcome.
Sonny and I then watched Man U draw against a plucky Newcastle and spent teeth cleaning time working out the points differential for The Mighty Arsenal to win the league.
Zo's finally sat down to salivate over the new show HUNKS on Sky Living, which is a bit odd considering I'm currently wearing a T-shirt that says 'All this and brains too'
Talking of hunks, here's the dynamic duo who single handedly raised £4k for Anthony Nolan. Nice one boys.

Zoe: I heart London

After popping into the Whittington this morning for a quick platelet infusion we popped into town to see what was happening. It was great and we came home smiling.

Gavin: And so it goes on...

The following is an abridged version of phone calls that meant I missed the entire Arsenal V Man Utd semi Final and the amazing Van Persie hat trick...

(Phone rings)
"Hi, it's the on-call consultant at the Wittington, I'm afraid that with a BP of 150 Sonny needs to come in"
"Ooookaaaay, but why? We all know his BP has been high for a few weeks and the Renal team at GOSH  have him on a programme so I don't want him in if you're just going to do obs"
"Right, well I've spoken to GOSH and they're adamant he comes in."
"Ok, I'll call GOSH and call you back"
(Phone GOSH)
"Hi, it's Gavin Sonny's dad"
"Oh hi, how is he"
"He's great, chirpy chatty and watching football"
"So why are you ringing if he's so good?"
"Because apparently you've told him to go into The Witt for a shot of Nifedipine which he can't have anyway as he has a reaction"
"OK, but I think he needs to be seen by a doctor"
"Why?"
"Because of his BP"
"...Which has been high for 3 weeks and he was let home by you with it at 162 so why the panic?"
"Right, err, ok, err, how about we give him another dose of Atenolol tonight and you take his BP again and he can stay home?"
"Fine, but I can't take his BP as I don't have the machine, although I've organised for a community nurse to be here at 9am to do it in the morning"
"OK, let's do that"
(Phone the WItt)
"Hi, we're giving him and extra dose and I'll bring him in if anything changes"
"Err, ok, but who have you spoken to?"
"The on-call BMT Reg"
"She was the one that told me to tell you that Sonny had to come in"
"I've convinced her he doesn't"
(slightly pissy now, adopts a condescending voice)
"So who would you rather ring in the morning me, the renal team or the on-call BMT Reg?"
"D'you know what, I'd rather ring none of you as it's my weekend and we're in exactly the same position as we were on Friday after spending a pointless 4 hours at GOSH and given a clear plan that you weekend Registrars don't know about and are only going on the fact that his BP is high rather than reading two foot of notes to get a fuller picture"
"I see... err, bring him in if anything changes then"
"No shit sherlock".

Gavin: Final push

Here's a short film. Watch it because it's fun and it raised £8k. You've all been amazing... just amazing.

Zoe: Better safe than sorry

As I was gazing at Sonny's beautifulness yesterday I noticed that his eyes looked really strange. One pupil was absolutely huge, taking up the whole of his eye and the other was the size of a tiny pin prick. Following this TTP blood disorder we'd been told to bring him in immediately if we noticed anything strange. We'd had a nod and wink about a famous young footballer visiting the hospital today and dangling this huge tasty carrot he agreed to go in for a quick once over on his one day off from treatment this week. Needless to say everyone went into overdrive when we pitched up and the day went from bad to worse when he got the news that the footballer had tripped over his laces in training and wouldn't be coming after all. An emergency CT scan showed nothing so plans were then made to keep him in for observation overnight as the neurological team weren't happy about letting him go home.  By this time it was early evening and an already heartbroken Sonny flipped out and poor old Ruby who'd been patiently waiting throughout the whole drama started to loose it too as we'd originally planned to be spending the day celebrating a friends birthday. My protests fell on deaf ears but luckily the cavalry arrived in the shape of Gav who managed to get the on call neurological consultant to agree to let him home based on the fact that nothing had changed for the worse in 7 hours and on the proviso he was back first thing so he could have an emergency MRI scan of his head and eyes. This scan was also negative which was a huge relief as he's got to have his PET scan at UCH tomorrow to see how he's doing following the radiotherapy. What with his body chomping through platelets at an extraordinary rate, high blood pressure and low hb, we seem to be lurching from one disaster to the next at the moment so some good news will be gratefully received.