Thursday, 25 November 2010
Zoe: Get Lost Lady
Sonny is showing teenage tendencies - sleeping in, eating cereal and generally finding me really irritating. Can't say I blame him though when my only topic of conversation is asking him how he feels, if he wants to eat anything and getting him to lift up his shirt so that I can check for any sign of a rash.
Wednesday, 24 November 2010
Zoe: Weird Science
Today was a bit of an anti-climax really. The tiny weeny 1ml syringe you can see being pushed into Sonny contains over 40,000,000 donor cells and took all of three seconds to go in. For those of you interested in the clever stuff he needs 1 million cells per kilo. The cells this time around are just Tcells or CD3 if you're a really clever medical talking person like me and they are the type that like to make GVHD (graft v host disease). We've been told not to expect to see any signs of GVHD for at least two weeks. And that guys and gals is it. Better get Christmas shopping then.
Tuesday, 23 November 2010
Zoe: Ready. Steady. Go.
Sonny spent yesterday curled up on the sofa. He was meant to sit the second part of one of his exams but it can wait. All his bloods are really low and he's been having nose bleeds despite having platelets on Friday. This is all from the chemo so today he had more platelets followed by a blood transfusion and he's now feeling much better (no thanks to Arsenal, hello guys did you not get our memo?). Big day tomorrow. He is back at GOSH and his donor cells are being defrosted ready for him to receive them as an outpatient. We are all feeling rather tense about it as we don't know what's going to happen but we are as ready as we'll ever be so bring it on.
Sunday, 21 November 2010
Gavin: The War of the Roses, Celebrations and Quality Street
It was Sonny's party last night which went pretty well I reckon. Seven boys with large plastic guns setting up and attacking base camps, then frantically running round collecting the 1p bullets in case they lost any. Luckily, all Sonny's friends are lovely boys, so there were no tears, no tantrums and no vomming after too much cake. He had a great time and despite only getting four hours sleep seems very perky today. It also capped off an amazing performance from The Mighty Arsenal who, despite being two goals down at half time, 'outgunned' Tottenham to win 3-2 at The Emirates. That will put a serious dent in their aspirations to finish in the top four this year I can tell you.
Saturday, 20 November 2010
Zoe: Under seige
Help... we have been taken hostage by 7 small boys. They are armed and very dangerous. If we survive we'll post pictures of our ordeal in the morning.
Friday, 19 November 2010
Gavin: Stand up, if you hate cancer...
Sorry... what was that? You're wondering what we're doing for Sonny's party tomorrow night? Well, it's 10.50pm and we've just finished making a cake that looks a bit like a gun, Zo's been to the National Army Museum (N.A.M) for party bag gifts and the lovely Ocado man has delivered 78 bags of crisps and a packet of hot dogs.
It's a big day tomorrow for many reasons. Sonny's bloods are at their lowest so he went to the Shittington for a quick tranfusion tonight to get him feeling better for his party. He takes the second part of his Entrance Exam in the morning and more importantly, The Mighty Arsenal take on Tottenham at Midday.
Interestingly, Tottenham are quite like his illness. An ever present annoyance that won't seem to go away how ever many times you beat it.
The new cells go in next week. We're hoping for a Van Persie hat trick rather than a Ledley King*
*Mum, that means we're really hoping for a great result rather than them not working properly despite being quite important in the big scheme of things.
It's a big day tomorrow for many reasons. Sonny's bloods are at their lowest so he went to the Shittington for a quick tranfusion tonight to get him feeling better for his party. He takes the second part of his Entrance Exam in the morning and more importantly, The Mighty Arsenal take on Tottenham at Midday.
Interestingly, Tottenham are quite like his illness. An ever present annoyance that won't seem to go away how ever many times you beat it.
The new cells go in next week. We're hoping for a Van Persie hat trick rather than a Ledley King*
*Mum, that means we're really hoping for a great result rather than them not working properly despite being quite important in the big scheme of things.
Thursday, 18 November 2010
Zoe: Sshhhh
I'm having to write this very quietly... Sonny is in the kitchen sitting the first of his entrance exams for secondary school. GULP.
Wednesday, 17 November 2010
Tuesday, 16 November 2010
Zoe: Homework
Sonny has felt rather rubbish today thanks to yesterday's chemo. He could hardly move for most of the day and when he was awake he was bored, bored, bored. Luckily, the healing powers of PS3 were working by this afternoon and this evening he even felt bright enough to try some homework set by his school this week (thank you for telling him about it Eva). Ruby had the same project to do so they decided they'd submit a joint entry. Their brief was to make a shelter for two Lego people that could withstand 500g and 200ml of water being tipped on it. Thinking it could get ugly, I hastily removed myself from the situation by making a cake for Sonny's birthday tomorrow. Here are the results... looks pretty good to me and Ruby informs me its been scientifically tested for up to 700g (two DietCoke cans) and the sloping roof should keep the nice Lego folk dry. You'll have to wait for cake...
Monday, 15 November 2010
Gavin: Happy Birthday Nanny
Sonny endured the drudgery of chemo today but was brightened up by Nanny and Da coming up to visit for her birthday today and cooking us all our tea (which was very kind considering it was her special day). Ruby is still struggling to sleep (can't remember if you all know this), so went to bed with some special CD's that are meant to help. They do seem to have worked despite us both giggling at the "you're falling asleep under the finest silk sheets" line on track one. "You're falling asleep under IKEA’s finest" would be perhaps be more appropriate but hey ho. Anyway, this is all pretty dull so here's a picture of the kids toasting marshmallows over a tea light (IKEA again) as I couldn't be bothered to make a fire for them. I'm not sure why Ruby looks like a prisoner in a Texas jail, but dang girl, that hair be banging.
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