Zoe: Bad Medicine

Back in the comforting bossom of GOSH today. After yesterday its incredibly comforting to be back where everyone knows his history. The care here is exceptional. It really is, Sonny's consultant joined him in his ECHO just to get him home a little quicker. With every week Sonny's been at home his medicines seem to have increased. He's got a bit of fluid around his heart which could be GVHD but not enough for it to be a big problem. His high blood pressure is not bad enough for all the side effects of the medicine we started last week to reduce it so we've stopped that altogether and also come off a few other medicines to give his kidneys a bit of a break... still waiting for X-ray results but in amongst lots of ifs, buts and maybes he's home and shouting up take away pizzas as a treat for a couple of rough days.