Gavin: The bedside blog returns

We're back in GOSH today packed to the gunnels with PS3's, duvets and something edible to eat (although to be fair, the food here is pretty good). Typically, the results from his PET scan on Tuesday weren't on the system but, after a good poke around by our consultant (on Sonny, not the system) he couldn't spot any new lumps and seemed really happy with how he was. Hoobloodyra.
Chemo has just gone up (7.45pm) so we're in for a long night but the only thing we have to get up for is the Grand Prix so we're not too worried. In fact, I predict a very lazy morning starting with croissants, freshly squeezed orange juice then egg, bacon and the morning papers. Did you get that Zo? I said croissants, freshly squeezed ora... oh, never mind.

Gavin: Quick update

Sonny back into GOSH tomorrow as his nuetrophils have come up on their own (clever boy). He starts the next course of chemo and we'll be there for a week or so. His last dinner at home? A bowl of coco pops, bless him.
More to come...

Gavin: This is not just any food, this is... err...

Sales Executive: We all know that a healthy balanced diet is essential to any kid, yeah? So in sick kids, it's obviously even more important, right? So we're proposing that using the basic facilities at the hospital, we can still provide decent food and plenty of fresh fruit and vegetables.
NHS Trust Procurement: Can you do it for less than 4p a child?
Sales Executive: No.

And so it goes on. The standard of food at The Shittington is atrocious and not in a 'ooh, no fresh pesto today' way but in a 'sorry, what actually is that?' one. The only thing that I tried was an omelette that looked and tasted like afterbirth. In fact, the last time I had anything so bad I was nine years old choking down spam fritters. To sum it up, the woman in the queue in front of me said 'jesus, the food's better in prison'. And, she wasn't joking.
So what do we do? I reckon we embark on a Jamie Oliver style exposé where we take famous chefs around the country and reform different units. In fact... the more I think about this, it's brilliant... we'll start in the Gastric Department with Hugh Fernley-Whittingstool, head to Geriatrics with the Hairy Bikers then onto STD's with Ruth Rogers. The only way this can fail is if those short sighted producers at Channel 4 turn me down like they did with 'Raymond's Blancety Blanc.

Ruby: Builder Bear

Hi, today my play specialist came round.
Today was a very interesting lesson for our task was to make a bear with a hicman line.
After a long hour she was finally ready and was able to withdraw blood and take the meds to make her better.

She will be treated like I treat my brother... Oh no I won't fight with her I will care for her LOL HA HA.

I decided to call her Butterscotch because of her golden shimmering fur. call me a wos but I am now a nurse and my friend Tallula is making nurse passes for us.

now I'm off to take some blood bye.

Zoe: 0.3 degrees

I've found this weekend really tense and feel almost brittle with nerves. Sonny's neutrophils are at 0.1 - if his temperature hits 38 he has to go to hospital immediately. His temp has been hovering around 37.5-37.7 all weekend. Sonny is getting increasingly suspicious of my over casual manner when I look at the thermometer and now whips it out his mouth to take a look at it first. He is due more chemo on Thursday but as his neutrophil counts are so low he's going to need more daily injections to bring them up. I haven't told him yet...

Gavin: Saturday...

I love Saturdays. After a week at work being away from Sonny, Zoe is quite happy to take Ruby to kick boxing while I play Call of Duty with him and watch Soccer AM. He had a terrible day yesterday, spending most of it in bed with crushing headaches and a very up and down temperature, but this morning he's woken pretty chirpy. We put plenty of calls into the hospital last night to get their opinions which ranged from the cancer, a virus, tiredness, a reaction to the morphine or because there isn't a full moon this week. We'll keep an eye on him today in an attempt to keep him at home until Thursday when he's back in GOSH for a week starting the next part of his chemo.
And, when I say 'play' Call of Duty with him, I mean I watch while he blows up stuff. It's thrilling.

Gavin: The only way this would have been better is if Tom Cruise was there mixing cocktails...

The date: 3rd March
The venue: Wembley
The seats: David Beckham's box

David Beckham: Hi Sonny, I've heard a lot about you
Sonny: Hi, wow I didn't think we'd actually meet you...
David: Would you like me to sign your England shirt (Note: David provided goody bags for all the kids containing full England and training kits, toys, books, photos, pens and aftershave for the dads etc.)
Sonny: No thanks
David: (laughing) alright mate
Me: (out of earshot of David) why don't you want it signed mate?
Sonny: Because I want to wear it not get it framed
Me: Well... get that one signed and I'll get you another one to wear
Sonny: But that won't be the one David Beckham bought me?
Me: Fair enough mate... good call
Me: (to David) sorry about that, can you sign his programme?
David: yeah, 'course, my kids are just the same when I get them signed stuff... they're like "I can't wear this"
Me: Thanks so much for the box, the people who've looked after us, the food, drink and of course, you turning up, it's been an amazing night
David: you deserve it mate
Me: *swoon*

Zoe: Home free

Just a quick blog tonight. After much discussion and debate Sonny was allowed home today. He had a very exciting engagement... more tomorrow x

Zoe: Sexting (with bad language)

The second question people ask me is about how Gav and I are coping? Jumping on the back of the sexting media storm I thought yesterdays chats will reassure you that things are ok.


Z: Really good night of nothing to report. No temps again so waiting for today's blood results. He's still asleep (god knows how the noisy f*****s) I'll call you if I haven't been escorted off the premises x
G: Ha ha... chirpy considering! Be nice and they may let us home, call me when you can x


G: You bought a self help book?
Z: Spiritual enlightenment through lifes shit trip x
G: Next stop, the alpha course. X
Z: If it comes to that we are f****d X


Z: Sonny grolly with low bloods x
G: Log in on your fancy phone and blog that... X
Z: I've tried but it will only let me type in the title bar ... My phone is rubbish x
G: Poor... Will do it later hun x
Z: My phone is great I did it xxx
G: He he x


Z: He's eating and laughing at the Simpsons x
G: The magic of blood. I'm ironing and planning your shelves for down here.... Tell Sonny he is darren shan x


G: How are my babies doing? x
Z: Hell's kitchen USA Keeping him entertained x


G: Miss you a lot x
Z: Call soon x

Zoe: Relentless

Sonny hasn't had a temp for 36 hours and we may just be facing a classic case of febrile neutropenia. Sonny is not very happy. He's been bored (a good sign) but today he's finding it all pretty tough. He feels rough and has barely any energy due to low hb levels which a blood tranfusion should help fix by tonight.